Resources

Changing Faces: Media Representation and the Path to Positive Portrayals of Facial Difference

Changing Faces: Media Representation and the Path to Positive Portrayals of Facial Difference – Panel discussion hosted by Film Producer, Dave Liu, at the SXSW festival. Shining a light of facial depictions of facial difference in the media and his film, ‘Every Day After.’

The Power of Lived Experience: Facing Cleft and Craniofacial Care Forward

“The Power of Lived Experience: Facing Cleft and Craniofacial Care Forward” panel discussion at the American Cleft Palate Craniofacial Association conference.

A Guide For Educators

This booklet is designed to help educators and school staff better understand what Moebius syndrome is, and how to best help a student with Moebius syndrome have a successful academic year.

India & Nepal: Exposing Human Rights Violations

Stigma Project: A report detailing the findings from interviews with individuals, families, healthcare providers and charity workers and government officials.

Mexico: Exposing Human Rights Violations

Stigma Project: A report detailing the findings from interviews with individuals, families, healthcare providers and charity workers.

Returning to Work Support Pack for Burns

This note summarises some questions which people in England and Wales may have when planning a return to work after a burn injury.

The Pretty Ugly Truth about Legal Protection for People with Facial Disfigurement in the UK

This paper is written from both legal and personal experience, and provides a comprehensive review and critique of discrimination legislation in the UK and how this applies to visible difference.

Visible Difference & Disfigurement in the Arts

It is clear that people with marks, scars and conditions affecting appearance are absent from the conversation on diversity, equity and inclusion both on screen and stage, and throughout the creative process. This is an often-excluded community, made up of talented professionals whose skills and expertise are being overlooked in place of actors without real lived experience of scars and other visible differences.

Model of Good Practice: Appearance Inclusive Workplaces

This model of good practice for employers has been written by Researchers at Queen Mary University of London to help make inclusive workplace environments in Britain for people with a visible difference. It is designed to give practical guidance only which can be adapted within different contexts.

A Guide For Healthcare Providers

This booklet is designed to help healthcare providers get a brief overview of Moebius Syndrome and guidance on the types of specialist care a patient may require.

Books About Inclusion and Diversity for Children and Youth

This is a list of books that have diverse characters and stories and talk about differences. This list is not exhaustive, nor are all the books on this list perfect. This is just a starting point to seeking a diverse range of characters.

Les mesures d’adaptation au travail

Prendre des mesures d’adaptation est une obligation légale au Canada. Les patrons et les fournisseurs de services se doivent de modifier leurs politiques et leurs pratiques afin de permettre la pleine participation de tous et de promouvoir l’inclusion.

Employment Accommodations

The duty to accommodate is a legal obligation in Canada. Employers and service providers have an obligation to adjust policies and practices to enable full participation and promote inclusion.

Vocabulaire et modes de communication – un document destiné aux praticiens

AboutFace a créé ce document en collaboration avec des individus de tout âges faisant partie de la communauté des personnes qui ont une différence faciale. Il se penche sur le vocabulaire et sur les différents modes de communication et s’adresse tout particulièrement aux praticiens qui travaillent avec des membres
de cette communauté, qu’ils soient médecins, dentistes, travailleurs sociaux, éducateurs ou autres.

Artificial Intelligence and Facial Discrimination

Written for the AboutFace York blog series, this article discusses artificial Intelligence and ethical considerations around the effect of AI technologies on the facial difference community.

Sharing Your Story in the Media

What to consider when the media asks you for your story (about life with ichthyosis or facial differences or disabilities). By Carly Finday, Face Equality International Ambassador.

James Partridge – Archive of Media

Dr James Partridge OBE founded both Changing Faces UK and Face Equality International. He was the pioneer behind the face equality movement, a burns survivor, social entrepreneur, and author.

Everybody’s Different: The Appearance Game

We all look different. We are all different shapes, sizes, colours, and some people have differences that might seem unusual. Everybody’s Different: The Appearance Game aims to help children to understand that differences in appearance are normal and there’s more to who we are than just how we look.

Choose Kind Initiative

The #ChooseKind Initiative aims to develop kindness education and prevent bullying, intolerance, and isolation that so many children face at school each day. With escalating problems of bullying, violence, isolation, loneliness, and intolerance in schools, this message has never been more relevant.

ABC Kind Templates

Templates to support lessons based off of children’s books.

“I Am Burning, I Am Burning”: Affect, acid attacks and British tabloid newspapers

Westminster University
This article draws on studies that explore forms of contemporary journalism which focus on the role played by the expression of emotions and feelings. We present results from a qualitative study which examined how British tabloid newspapers covered acid attacks on women between 2010-2016.

Disability, Media, and Representations

Bringing together scholars from around the world to research the intersection between media and disability, this edited collection aims to offer an interdisciplinary exploration and critique of print, broadcast and online representations of physical and mental impairments.

Competing narratives in framing disability in the UK media

By using discourse analysis, this paper compares and contrasts the journalistic coverage of the story of a beauty blogger with facial disfigurement with her blog. On the one hand, we will show the extent to which a self-representational account may align with the journalistic coverage, reinforcing rather than contesting mainstream representations of disability.

Face Equality Week

My name is Adam Pearson, I am a TV Presenter, Actor and Campaigner (and Celebrity Mastermind Champion). I, like over 1 million people in the UK, have a facial disfigurement / visible difference. Mine is caused by a genetic condition called Type 1 Neurofibromatosis (NF1). This condition is characterised by the growth on non-cancerous tumours, called Fibromas, on nerve endings.

Daring to be different

The Phantom, Darth Vader, and Me

Dr Lise Deguire – “Please remember this the next time you see a movie featuring a burned psychopath as the villain. We look different on the outside, but we may be the nicest, bravest people you know. “