Face Equality International
IFEW

Privacy Policy

Face Equality International (also described as the alliance)

Face Equality International (also described as the alliance)

Privacy Policy

As a charity registered in Guernsey, Face Equality International LBG (“FEI”) will treat any information that we may hold about you, your organisation or any other third party confidentially in accordance with this Privacy Policy and in line with the recently introduced Data Protection (Bailiwick of Guernsey) Law 2017 which now regulates any personal data held by organisations, both historic and current.

Please read this Privacy Policy carefully as we are asking you to agree to this Policy when you consent to have your personal and/or organisational details held by FEI. If you have any concerns or questions about this Privacy Policy, please contact us by email at phyllida.swift@faceequalityinternational.org or in writing to our registered address as shown below.

What personal and organisational information do we hold and why?

FEI will collect, hold and store information provided to us by you and your organisation. This will include your name and contact details which may be provided in person, or by telephone, email, or other correspondence. FEI uses this information to communicate with you and your organisation and to provide services and information to you. This data may be held in writing or electronically and allows us to comply with any statutory or reporting obligations to which we are subject.

The stored information may include information of a “sensitive” or personal nature given to FEI in confidence. We will keep this information for seven years or for as long as we may agree, as you have the right under the new law to access, correct, update, erase or instruct us to move your personal information to a third party.

Do we transfer information to others?

(a) Data relating to you personally

FEI is committed to protecting your personal data and privacy and will not use your information for any purpose other than that described above. FEI will only pass this information to third parties if we have your specific written consent unless we are required to do so by regulatory or other authorities for legal or other reasons.

(b) Data relating to your organisation

FEI is committed to sharing information about your organisation’s work in pursuit of face equality with other members of the alliance. We assume that in becoming members of the alliance, your organisation consents to this sharing and we will not do so only if you specifically request FEI not to do so.

Your rights under the Data Protection (Bailiwick of Guernsey) Law 2017

Your rights are more fully explained at https://dataci.gg. Should you wish to exercise any of your rights, we ask that you write to FEI at its Registered Office, Moulière, La Banquette, Albecq, Guernsey GY5 7EQ. FEI undertakes to deal with your request as soon as practicable, or at the very latest within 14 days of receiving your request.

A special thank you to Positive Exposure

We had the pleasure of meeting Rick Guidotti, Founder of Positive Exposure recently via a panel discussion run by the Moebius Syndrome Foundation. Our visions and missions were clearly aligned, with both of our organisations being committed to the ‘positive exposure’ of people with facial differences around the world. Positive Exposure promotes a more inclusive world […]

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Why is Halloween difficult for the facial difference community?

When Halloween comes around, it is a very visible reminder that people think our differences make us scary.

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    Please read our Privacy Policy here

    The mission of Face Equality International (FEI) is to mobilise the many groups and organisations, big and small, national and international, which support and represent people with facial differences and disfigurements and thereby to create the critical mass and solidarity needed to gain global attention for the campaign for face equality.

    About FEI

    A special thank you to Positive Exposure

    We had the pleasure of meeting Rick Guidotti, Founder of Positive Exposure recently via a panel discussion run by the Moebius Syndrome Foundation. Our visions and missions were clearly aligned, with both of our organisations being committed to the ‘positive exposure’ of people with facial differences around the world. Positive Exposure promotes a more inclusive world […]

    Read More

    Why is Halloween difficult for the facial difference community?

    When Halloween comes around, it is a very visible reminder that people think our differences make us scary.

    Read More

    Support & Advice on Discrimination

    If you are seeking support, or advice on reporting cases of discrimination or injustice then here are some links to information and services: Many of our members can offer condition-specific support, they can all be found here.   Europe Victim Support Europe Equality Bodies – Equinet USA Victim Support USA USA Disability Rights UK  Victim […]

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    FEI is looking for a new Treasurer

    This is an exciting time for this young, international charity, as the global movement for face equality continues to gather recognition and momentum. The charity is currently registered in Guernsey and in the process of moving over to the UK. The existing Treasurer will hand over duties once we are based in the UK. We are looking for someone who can play a key role in the financial and strategic development of FEI. 

    Read More