Open letter written by Jenny Kattlove. Jenny’s open letter highlights the impact of portraying villainous character, Frank Nakai with scars in the TV series, Dark Winds.
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Open letter written by Jenny Kattlove. Jenny’s open letter highlights the impact of portraying villainous character, Frank Nakai with scars in the TV series, Dark Winds.
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Negotiating the external world and the psychosocial complexities that ebb and flow from living your life with a clear visible difference does become even more of a challenge. But if you can recognise this fact a pathway can be created and entered whereby you flip the switch.
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Negotiating the external world and the psychosocial complexities that ebb and flow from living your life with a clear visible difference does become even more of a challenge. But if you can recognise this fact a pathway can be created and entered whereby you flip the switch.
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Negotiating the external world and the psychosocial complexities that ebb and flow from living your life with a clear visible difference does become even more of a challenge. But if you can recognise this fact a pathway can be created and entered whereby you flip the switch.
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There aren’t many humanizing stories about us, they need to get this one right.
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Hate crime, and the relationship between disfigurement and disability. What is it that someone perceives when confronting an individual with a visible disfigurement?
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Please join our UNITED and now-global community and take part in one of our many real-time and online activities. Take
time to learn more of Moebius syndrome, facial differences, face equality – efforts being made to UNITE us in
welcoming those once marginalized by facial differences. We are far more than a medical description.
How your voice and experience can be a bridge to broadening an outsider’s view of living with a facial difference or/and disabilities, in the hope that it will bring forward a world where the social model of disability is a reality, and there is social equality for all.
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Speaking up, and reclaiming power so that the facial difference community is not excluded from the fight to save our planet is essential.
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When I was growing up, so often at Halloween, bullies would point at me, ‘oh look at her face, got her Halloween mask on already’. It’s degrading to have someone tell you that you look like a monster.
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When Halloween comes around, it is a very visible reminder that people think our differences make us scary.
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If you are seeking support, or advice on reporting cases of discrimination or injustice then here are some links to information and services: Many of our members can offer condition-specific support, they can all be found here. Europe Victim Support Europe Equality Bodies – Equinet USA Victim Support USA USA Disability Rights UK Victim […]
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This is an exciting time for this young, international charity, as the global movement for face equality continues to gather recognition and momentum. The charity is currently registered in Guernsey and in the process of moving over to the UK. The existing Treasurer will hand over duties once we are based in the UK. We are looking for someone who can play a key role in the financial and strategic development of FEI.
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We had the pleasure of meeting Rick Guidotti, Founder of Positive Exposure recently via a panel discussion run by the Moebius Syndrome Foundation. Our visions and missions were clearly aligned, with both of our organisations being committed to the ‘positive exposure’ of people with facial differences around the world. Positive Exposure promotes a more inclusive world […]
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Rasheera Dopson Intersectionality is defined as “the complex, cumulative way in which the effects of multiple forms of discrimination (such as racism, sexism, and classism) combine, overlap, or intersect, especially in the experiences of marginalized individuals or groups (Merriam-Webster, 2021). For the purpose of this essay, I will be going outside the traditional boarders of […]
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Kerry Gillespie The stigma that comes attached to having a ‘different’ facial appearance was something that I suddenly found myself affected by.” Hi, my name is Kerry and I’m a PhD researcher at the University of Glasgow. My research focuses on the intriguing area of the body that is the human face. As a geographer, […]
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Zoe Cross “People with a disability should use a specialist dating site for the disabled. Achieving positive date matching outcomes for people with a visible disability can be challenging.” This essentially was the message a female would-be customer of a dating portal received recently. The woman involved is a BBC journalist and a wheelchair user, […]
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“We’re all born bald, baby!” – Terry Savalas Emma Sothern (Lady Alopecia) My name is Emma, I’m Irish and I’m 34 years old. I’ve had alopecia areata since I was 11. For the uninitiated, alopecia is an autoimmune condition where the immune system mistakenly attacks healthy hair follicles by mistake – in response to some […]
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