When I didn’t want to deal with pointed fingers or questioning looks while out in public, I could just let down my shield of long hair to cover as much of it as I needed. Now that’s not an option.
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When I didn’t want to deal with pointed fingers or questioning looks while out in public, I could just let down my shield of long hair to cover as much of it as I needed. Now that’s not an option.
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To advance equality, we must stop fearing our differences, recognize our conscious and unconscious biases, and shift our focus to our unique strengths and talents. End the worn-out tropes and stereotypes and normalize disfigurement.
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Casting people with facial disfigurement as confident and capable would help to change negative attitudes and false misconceptions. Continuing to ignore, exclude, or misrepresent us perpetuates the stigma, prejudice, and discrimination.
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I was reminded that one person can make a difference. I was reminded that I was that person; that I made a difference. That the start of my advocacy work started with a spark of anger.
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The way disabled people are shown on screen – often as the villain or having a tragic life – shapes how people see us. I strongly believe this is why children have been scared of me. And so we need disabled people – not just on screen but in writers rooms, overseeing auditions, behind the camera and on awards panels.
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“When it comes to destigmatising disfigurement on a community, society focused level, I don’t think I’m yet to experience anything as pioneering as what goes on at Lalgadh Leprosy Hospital.”
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If we are to ensure Face Equality International is truly international, we must understand what the global need is for this movement and build the networks to ensure that we understand the real challenges when accessing equitable healthcare for the FD community, but most importantly, we must understand what the face equality movement looks like in low to middle income countries like Nepal.
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The global movement for face equality continues to gather recognition and momentum. As a newly established UK charity, we are looking for two new recruits to join our team of face equality changemakers.
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Clara delves into cultural context and disability history. Having grown up in the US and after a move to the UK, she shares experiences of the parallel movements.
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Open letter written by Jenny Kattlove. Jenny’s open letter highlights the impact of portraying villainous character, Frank Nakai with scars in the TV series, Dark Winds.
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Negotiating the external world and the psychosocial complexities that ebb and flow from living your life with a clear visible difference does become even more of a challenge. But if you can recognise this fact a pathway can be created and entered whereby you flip the switch.
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Negotiating the external world and the psychosocial complexities that ebb and flow from living your life with a clear visible difference does become even more of a challenge. But if you can recognise this fact a pathway can be created and entered whereby you flip the switch.
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Negotiating the external world and the psychosocial complexities that ebb and flow from living your life with a clear visible difference does become even more of a challenge. But if you can recognise this fact a pathway can be created and entered whereby you flip the switch.
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There aren’t many humanizing stories about us, they need to get this one right.
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Hate crime, and the relationship between disfigurement and disability. What is it that someone perceives when confronting an individual with a visible disfigurement?
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Please join our UNITED and now-global community and take part in one of our many real-time and online activities. Take
time to learn more of Moebius syndrome, facial differences, face equality – efforts being made to UNITE us in
welcoming those once marginalized by facial differences. We are far more than a medical description.
How your voice and experience can be a bridge to broadening an outsider’s view of living with a facial difference or/and disabilities, in the hope that it will bring forward a world where the social model of disability is a reality, and there is social equality for all.
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Speaking up, and reclaiming power so that the facial difference community is not excluded from the fight to save our planet is essential.
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