Face Equality International
IFEW

Face Equality Reading List

The Face Equality reading list features a selection of books and reading material from authors with lived experience or who have a loved one with a facial or visible difference.

A Face for Picasso

Author: Ariel Henley


Can You See My Scars?

Author: Samuel Moore-Sobel


Changing Faces: The Challenge of Facial Disfigurement

Author: James Partridge


Diary of a Beautiful Disaster

Author: Kristin Bartzokis


Disfigured: On Fairy Tales, Disability, and Making Space

Author: Amanda Leduc


Face

Author: Benjamin Zephaniah


Face It: Facial Disfigurement and my Fight for Equality

Author: James Partridge


Faces of Equality

Author: Changing Faces


Facial Shift: Adjusting to an Altered Appearance

Author: Dawn Shaw


Flashback Girl: Lessons on Resilience from a Burn Survivor

Author: Lise Deguire


God Never Moved: A Couple’s Journey Through Fire to Life

Author: Diana Tenney and Jerry Laperriere


Growing up Disabled in Australia

Author: Carly Findlay


How I Learned to Rock My Life: The Peter Dankelson Story

Author: Peter Dankelson


I Almost Lost Her: A Memoir Of Unthinkable Tragedy

Author: André Xavier and Charlie Anne Xavier


I Like Me

Author: Nancy Carlson


In This Altered Body: A Survivor’s Story of Resilience and Love

Author: Charlene Pell


Isaac & Lilah: A story of similarities and differences

Author: Liz Jones – Microtia UK


It’s Okay to be Different

Author: Todd Parr


I’ve Got Scars, Baby!: How To Embrace Your Scars and Power Your Purpose

Author: Audra Bryant


I’ve Just Seen a Face

Author: Amy Mendillo


Lucia’s Story: My Imperfect Beauty

Author: Bella Lucia


MI9: The Beginning

Author: Adam Rood


No Horn Unicorn

Shani Dhanda


Not All Heroes Wear Capes

Author: Jono Lancaster


Peter’s Rockin’ Ear

Author: Peter Dankelson


Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

Author: Susannah Fox


Ride High Pineapple

Author: Jenny Woolsley


Smile with Simon

Author: Patricia A. Simon, RN


Standing at the Back Door of Happiness: and How I Unlocked It

Author: David Roche


The Courage to Be Kind

Author: Jenny Levin and Rena Rosen


Two Sides to a Face

Author: Chelsey Peat


Ugly

Author: Robert Hodge


Wonder

Author: R.J Palacio


Our member organisation Phoenix Society for Burn Survivors have created a Burn Community Bookshelf which can be found here.

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Danielle McWilliams and The Photo Voice Project

“I have worked in facial difference research for almost five years now – something I never ever thought I would say.”

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“Two Sides of a Face”

“I was reminded that one person can make a difference. I was reminded that I was that person; that I made a difference. That the start of my advocacy work started with a spark of anger”.

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Pink Peonies

My name is Logan Zelenak and I was born with a fast flow vascular anomaly in my left mandible. When I was nine I acquired a long scar from surgery ranging from the top of my left ear to the bottom of my neck. I’ve come a long way with accepting my facial difference, but like anyone would, I’ve had my fair share of bumps along the way.

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