Face Equality International
IFEW

Face Equality Reading List

The Face Equality reading list features a selection of books and reading material from authors with lived experience or who have a loved one with a facial or visible difference.

A Face for Picasso

Author: Ariel Henley


Can You See My Scars?

Author: Samuel Moore-Sobel


Changing Faces: The Challenge of Facial Disfigurement

Author: James Partridge


Diary of a Beautiful Disaster

Author: Kristin Bartzokis


Disfigured: On Fairy Tales, Disability, and Making Space

Author: Amanda Leduc


Face

Author: Benjamin Zephaniah


Face It: Facial Disfigurement and my Fight for Equality

Author: James Partridge


Faces of Equality

Author: Changing Faces


Facial Shift: Adjusting to an Altered Appearance

Author: Dawn Shaw


Flashback Girl: Lessons on Resilience from a Burn Survivor

Author: Lise Deguire


God Never Moved: A Couple’s Journey Through Fire to Life

Author: Diana Tenney and Jerry Laperriere


Growing up Disabled in Australia

Author: Carly Findlay


How I Learned to Rock My Life: The Peter Dankelson Story

Author: Peter Dankelson


I Almost Lost Her: A Memoir Of Unthinkable Tragedy

Author: André Xavier and Charlie Anne Xavier


I Like Me

Author: Nancy Carlson


Isaac & Lilah: A story of similarities and differences

Author: Liz Jones – Microtia UK


I’ve Got Scars, Baby!: How To Embrace Your Scars and Power Your Purpose

Author: Audra Bryant


It’s Okay to be Different

Author: Todd Parr


I’ve Just Seen a Face

Author: Amy Mendillo


Lucia’s Story: My Imperfect Beauty

Author: Bella Lucia


MI9: The Beginning

Author: Adam Rood


No Horn Unicorn

Shani Dhanda


Not All Heroes Wear Capes

Author: Jono Lancaster


Peter’s Rockin’ Ear

Author: Peter Dankelson


Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

Author: Susannah Fox


Ride High Pineapple

Author: Jenny Woolsley


Smile with Simon

Author: Patricia A. Simon, RN


Standing at the Back Door of Happiness: and How I Unlocked It

Author: David Roche


The Courage to Be Kind

Author: Jenny Levin and Rena Rosen


Ugly

Author: Robert Hodge


Wonder

Author: R.J Palacio


Our member organisation Phoenix Society for Burn Survivors have created a Burn Community Bookshelf which can be found here.

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How to get your State to Recognise Facial Difference

Logan Zelenak is a face equality activist based in Michigan. Their recent efforts have seen them connect with their local Senator, resulting in a vote to mark face equality day in the state. Logan documents their journey and shares their personal thoughts and experiences of the process.

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Face Equality Reading List

A selection of books and reading material from authors with lived experience, or who have a loved one with a facial or visible difference.

Read More

Never to be Hidden Again

When I didn’t want to deal with pointed fingers or questioning looks while out in public, I could just let down my shield of long hair to cover as much of it as I needed. Now that’s not an option.

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