Who am I? My name is Tessa Schiethart. I am 26 years old and I have a port wine stain birthmark on my face. It is part of the Sturge Weber Syndrome that I have, which also results in blindness in my right eye due to Glaucoma. My Studies Last September I continued my studies … Read More
The first Week of many… People with unusual-looking faces have been all over the media and social media in the last week! Whether on, Turkish, Canadian or Taiwan TV or Channel 5 or BBC World TV or in local media (as in Grand Rapids, Missouri), it has been so refreshing to see their faces and … Read More
Lauren-Marie 1. What does face equality mean to you? To me, face equality is about ensuring that every individual has an equal opportunity to make the most of their lives and talents, regardless of any facial difference or disfigurement they have. No one should be treated unfairly or have limited chances in society because of the way they were born or … Read More
Sunshine Social Welfare Foundation 1.What does your NGO do to support people with disfigurements? Since 1981, the mission of Sunshine Social Welfare Foundation has been to provide comprehensive services for burn survivors and people with facial disfigurements in order to assist them in their physical, psychological and social rehabilitation, but also to uphold their … Read More
The Phoenix Society – Michigan, USA Face Equality at Phoenix Society Phoenix Society hasn’t always called it Face Equality, but we’ve been advocating for acceptance and respect for decades. With statements like “Beyond My Scars,” “Burns are Beautiful,” and “You are Greater Than,” we’ve been reminding each other – and the world – that our … Read More
Nerve Tumours UK 1.What does your NGO do to support people with disfigurements? Nerve Tumours UK provides support and information, as well as raises awareness for over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the … Read More